The creation of national health data hubs: what lessons can be learned?
An event organised in the framework of the French Presidency of the Council of the European Union
* This event is not organised by the French Government. It is however authorised by the French Government to use the emblem of the French Presidency of the Council of the European Union.
Co-organised by the French National Health Insurance Fund (CNAM) and the Directorate for Research, Studies, Evaluation and Statistics (DREES) as well as the Health Data Hub in France and Findata in Finland, the event reviewed the major milestones in the establishment of the French and Finnish national health data platforms, the bilateral partnership signed between the two respective structures, as well as the procedures for accessing health data in France and Finland.
In addition to the representatives of these two platforms, the sessions were led by representatives of the ministries concerned - Ministry of Health in Finland and Ministry of Solidarity and Health in France - but also the French National Health Insurance Fund (CNAM), a speaker from the European Commission and one or more speakers from Sitra, the Finnish innovation fund.
This event took place on May 11, 2022. The program, press kit and replays are available below.
14h00 - 14h15 : Introduction
- Bruno Maquart, President of the Health Data Hub
- Dominique Polton, Health economist, President of the Health Accounts Commission and of the Scientific Council of the École des Hautes Études en Santé Publique (EHESP)
14h15-15h15 : Roundtable 1 - Implementing national data platforms
- Océane Xayakhom-Dauvergne, Moderator, International project manager at Health Data Hub
- Stéphanie Combes, Speaker, Director at Health Data Hub
- Johanna Seppänen, Speaker, Director at Findata (Finnish Social and Health Data Permit Authority)
- Fabrice Lenglart, Speaker, Director at DREES (Directorate for Research, Studies, Evaluation and Statistics)
- Damien Vergé, Speaker, Director of Strategy, Studies and Statistics at Cnam (French National Health Insurance Fund)
- Joni Komulainen, Speaker, Senior Ministerial Advisor at Finnish Ministry of Social Affairs and Health
15h15 - 16h00 : Break
16h00-17h00 : Roundtable 2 - European perspectives on health data sharing
- Markus Kaliolla, Moderator, Project Director at Sitra
- Ioana Maria Gligor, Speaker, Head of Unit, Digital Health, European Reference Networks
- Peija Haaramo, Speaker, Chief Metadata Specialist at Findata (Finnish Social and Health Data Permit Authority)
- Emmanuel Bacry, Speaker, Scientific Director at Health Data Hub
- Irène Kesisoglou, Speaker, Researcher at the EU Health Information System Unit, Sciensano
- Bernard Hamelin, Speaker, Member of the Scientific Advisory Board at Health Data Hub
- Ségolène Aymé, Speaker, Vice President of the Scientific Advisory board at Health Data Hub - Founder of ORPHANET (INSERM)
17h00 - 17h15 : Conclusion
- Isabelle Zablit-Schmitz, eHealth Europe & International Director at the eHealth ministerial delegation