Health data interoperability : A european challenge for impactful research project
An event organised in the framework of the French Presidency of the Council of the European Union
* This event is not organised by the French Government. It is however authorised by the French Government to use the emblem of the French Presidency of the Council of the European Union.
France has one of the richest medico-administrative databases in the world, the claim data base of the National Health Insurance Fund, covering the entire French population for any medical act or healthcare (at least partially). However, understanding the data, its potential, its organisation, its biases and limitations requires a tremendous investment for each project coordinator. The use of health data in France is hence currently limited to a small number of experts and conducting research projects on a European scale remains a real challenge.
This event was the opportunity to highlight actions conducted in France to improve the use and exploitation of health data for research purposes, including the use of common data models. Several data models were presented, including a sequence dedicated to feedback on the transformation of French health data into these formats.
This half-day event, organised by the Health Data Hub with the participation of Bordeaux PharmacoEpi, AP-HP, the Agence du Numérique en Santé and EHDEN, was open to anyone interested in an introduction to common data models and their uses for health databases.
The program, press kit and replays are available below.
Introduction
14h30 - 14h45 : Standardisation and research issues
Emmanuel Bacry - French
First part : Ongoing initiatives on data models
14h45 - 15h05 : Implementation in the European context: EHDS and interoperability
Emmanuel Bacry - English
15h05 - 15h25 : EHDEN: presentation, OMOP common data model and terminologies
Erica Voss, Peter Rijnbeek, Michael Kallfelz - English
15h25 - 15h45 : Terminology services and repositories: the French MultiTerminologyServer and Drug Interoperability
Tayeb Merabti, Mélissa Mary - English
15h45 - 16h30 : Break
Second part : OMOP - CDM sequence
16h30 - 16h50 : Transformation to OMOP format of the SNDS, the french medico-administrative database
Lorien Benda, Cécile Roseau - English
16h50 - 17h10 : ConcePTION data model: origin, purpose and perspectives
Nicolas Thurin - English
17h10 - 17h30 : The French PENELOPE initiative: improving cancer Patients ENrollment from rEal Life databases using the OMOP oncology Extension
Christel Daniel - English
Conclusion
17h30 - 17h45 : Conclusion
Marc Loutrel - French